If you have a chronic illness then you know what it’s like to be out and about, at a family gathering, or be at work and then BAHM your doubling over, writhing in pain or dizzy AF. I’ve been there. I live a busy life that I refuse to give up. I’m constantly at cons, conventions, weddings, out with friends or with family. Im hardly ever at home, and when I am I’m usually binge watching or playing video games. The symptoms can be a real pain sometimes, not to mention a huge inconvience. When a flare hits out of no where I keep a few things on me to help me cope until I get home.
Since its summer time and the next few weeks are going to be pretty busy I thought this was an appropriate topic.
I don’t keep everything in a fancy hello kitty bag like my friend Gem does, but the bag doesn’t matter it’s what’s inside that counts. I keep an array of things in my emergency kit, and when I list them all you’ll probably be thinking ‘Kat, is all of that necessary? Carrying that much stuff is mental!” But yes, it is necessary. I never know where I’m going to be or what sort of symptoms I’ll have. Lupus is called the imitator disease, fibro is more than just a pain disorder and with RA comes fatigue. I have skin issues sometimes, dietary issues, random pain, I get dizzy, shaky, nauseous, and brain fog is my worst enemy. The things I carry are helpful medical wise but also comforting. I’m that girl who carries a small stuffed animal at all times when I’m by myself because I get panic attacks and I need something to cuddle. Everything you carry should be tailored to what helps you physically and mentally.
For starters I carry bottles water, the small ones in case I need to swallow an emergency pill or something. I also keep fruit snacks in my purse, or crackers depending on where I’m going. Having a snack on hand can help blood sugar issues or keep you from being nauseous if you have to take meds that require being taken with food. I also keep benedryl, OTC pain, nausea and motion sickness meds in a small plastic baggy. Aside from basic spoonie essentials here’s a list of other items I keep on hand.
- Lavender oil- calming essential oil
- Peppermint oil- energizing and good for headaches/migraines
- Small toothbrush and toothpaste in case of unplanned vomiting
- Cocoa or shea butter
- Chapstick (or Vaseline. Vaseline has MANY uses)
- Makeup wipes
- Banana bag Oral Solution packets(here’s the link, these things are a LIFE SAVER)
- Gum (peppermint always)
- One dose of each medicine in case I have to stay overnight unexpectedly in the hospital, a family member or a friends house.
- Extra hair ties
- Humbled extracts pain butter? It may be calssified as a cream. Who knows. Their amazing, but icy hot or Bengay works too
- Icy hot roller stick with lidocaine.
- Hand sanitizer
- Small stuffed turtle/hippo (I change them out. But their basically beanie babies incase of panic attacks)
There’s probably more to that list that I’m forgetting, I told you, I carry A LOT of stuff. But I have too. I even keep a change of comfy clothes in my car. I just know how unpredictable life is, and how unpredictable my body is. I hate having to rely on others so I come prepared to EVERYTHING for any situation. I’ve always been the girl to have bobby pins, safety pins, double sided fashion tape, or extra everything because when I was in high school I would always forget something when I went on a trip. Now, I bring loads of small things so that I’m prepared for anything.
I keep it all in a small clear plastic airline toiletries bag, most of what I carry is travel sized so it fits just fine. It’s a bit snug but better safe than sorry right?? I’m usually wearing my psi bands, but if I’m not then I toss them in my purse/bag; the same goes for all my braces. I have one for both knees and both wrists. On particularly hot days I swap my water out for pedialyte or Gatorade.
You may not need all of this, maybe you’ll just benefit from emergency meds, an extra dose of every day meds, gum, and a snack. Or maybe you carry something I don’t! I’d love to hear what all my spoonie buddies keep on them in case of emergency flare ups!! But whatever you carry, it should be based on your needs and your preferences. Anita only carries meds and snacks where Elsa keeps her daily meds and a notebook on her. Everyone is different, everyone’s illness is different. I will say that carrying an emergency/survival kit no matter what your illness is a smart move. Even just keeping a slip of paper in your pocket or I’m a medical bracelet/necklace to let them know you have an illness, allergies or are on specific meds is a good idea in case of the worst case scenario. You never know what will happen and I feel less anxious leaving my house every day knowing I’m prepared and have contingency plans upon contingency plans.
If you have any ideas, suggestions or carry something bizarre coment below. I’d love to hear your thoughts. Have a great weekend my WildeKats!